TY - BOOK AU - Jo-David Fine ED - National Epidermolysis Bullosa Registry (U.S.) TI - Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry SN - 0801860245 U1 - 616.5 FIN PY - 0000///192008/// CY - London PB - Johns Hopkins University Press, 1999 Original from the University of Michigan Digitized KW - N2 - Inherited epidermolysis bullosa (EB) is a group of rare genetic diseases in which the skin is mechanically very fragile, resulting in chronic blister formation. In the most severe cases, affected persons may also experience disease involvement of other organs, cancer, and even premature death. This examination of EB employs a large research study population and uses epidemiological and biostatistical research principles. It also assesses more than 2000 patients with EB ER -